Ethical, Legal and Social Issues in Applied Genomics

Category:

This module will provide a framework for the ethical understanding of medical genomics and gives an opportunity to explore the ethical, legal and social issues involved in genomic testing and the wider implications for the patient and their families.

From April 2019 we are introducing a new application process.

To apply for HEE funded modules please directly contact your chosen University. The application process flow chart can be found here.

HEE Commissioned places will be allocated on a modular basis only as funding is limited. Speak to your chosen University if you wish to complete more than one module leading to a PGCert, PGDip, or MSc qualification.

Course Description

The module aims to provide a framework for ethical understanding of medical genomics.

Students will be provided with a platform of ethical understanding from which to consider issues of human confidentiality, autonomy, disclosure, informed consent and natural justice. Upon this platform, students will consider the impact of genomic technologies on individual lives and those of demographic and ethnic groupings. The social implications of the availability of genetic testing and screening will be considered, especially in the context of reproductive technologies. Finally students will be provided with a legal framework for patenting of genetic information as well as the use of genetic data for research, diagnostic and therapeutic purposes.

Outline Of Syllabus

  • Ethical, Legal and Social Issues (ELSI) for genomic medicine – confidentiality, autonomy, disclosure, informed consent, natural justice
  • Effects of opportunistic predictive, incidental or uncertain-significance results
  • Impact of genomic testing on individuals, and demographic and ethnic differences
  • Social implications of genetic testing and screening, particularly in the context of human reproduction
  • Legal aspects of genomic information in relation to diagnostic, therapeutic, and research use and patenting of genomic information and tests
  • Obtaining ethical approval for research projects
  • Specific ELSI issues as applied to clinical pathways.

Additional information

Type of Course

CPPD Module

Course Options

CPPD (15 credits)

Mode of Study

Offline

Experience

Intermediate

Delivery

Part Time

University Providers

Imperial College London, Queen Marys University of London / University College London, St Georges, University of London, University of Birmingham, University of Manchester, University of Sheffield, University of Southampton

Timetable

Start Date
University of Birmingham
Newcastle University
University of ManchesterMarch 2019
University of Sheffield
Imperial College London
Queen Marys University of London / University College London
St George’s, University of London / King’s College LondonSpring 2020
University of Cambridge
University of Southampton
University of Exeter

Please check the university providers websites for more detailed information about start dates, length and mode of study.

Funding Rules

Funding is limited to NHS healthcare professionals working in England from the full range of professional backgrounds and groups (such as medicine, nursing, healthcare scientists and technologists).  For those interested in CPPD modules, university entry requirements may include criteria around existing understanding and minimum English language requirements.

Not all universities offer the same CPPD modules. Please check with your preferred university to obtain details of the programme modules, entry criteria and timing before going through the funding application process.

Please download a visual flow diagram outlining the funding application and approval process.

Frequently Asked Questions

I have been awarded funding, started the programme but I am unable to complete the programme. What are my options?

Funding is awarded for CPPD modules only and there is no automatic ability to defer completion of the programme. You should speak to your preferred University provider in the first instance about your situation and also contact the Genomics Education Programme team regarding funding.

How much study time is required to undertake this programme?

Study time will vary across the delivery partners. You are advised to visit your preferred University website site for more information or to contact the relevant course lead. Most modules generally involve approximately 5 days of face to face teaching, followed by between 2-4 weeks of independent study and assessment preparation.

A distance learning option is provided at Queen Mary University of London.

Can I build up my CPPD modules to a full Master’s, PGDip or PGCert qualification?

The process and ability to do this will be dependent on your preferred University and you should contact them to discuss available options.

I am eligible but have been refused a commissioned place – why?

This may be due to the following potential reasons:

  • The University you have applied for has used up all its commissioned allocations
  • The total number of available national commissions have been fully allocated
  • We are now applying controls to the commissioned places based on healthcare profession roles to provide some equitable access across professions on a national scale
I am not eligible for a HEE funded commissioned place – can I self-fund?

This should be discussed with your preferred University

Do you have to have the university place confirmed before you submit an application for funding?

No – as long as the programme start date for your preferred University falls within the specified academic year for the funding application period.

I work for an organisation that provides services to the NHS – am I eligible to apply?

Yes – please provide details in the additional information section of the funding application form.

University Providers

Funded

The logos below indicate the university providers that are able to accept HEE funded applications for this course. Follow the links provided to begin your university application process.

Imperial College LondonQueen Marys University of London / University College LondonSt Georges, University of LondonUniversity of BirminghamUniversity of ManchesterUniversity of SheffieldUniversity of Southampton