This in-person event is for patients, advocates, experts and leaders wanting to address the challenges faced by people affected by rare diseases. Key themes for the event include the launch of a new five-year strategy and a forward-looking exploration of the next decade of rare disease innovation.
Notable talks include one highlighting the power of personal experience during ‘Patient Storytelling’ talk, with additional ones exploring what navigating relationships and mental wellbeing looks like while living with a rare condition. ‘Funding Futures’ will spotlight innovative patient-led pitches aimed at shaping the future of rare disease care and research.
For more information on this event, including how to register and associated costs, please visit its webpage or contact the event’s hosts, Cambridge Rare Disease Network (CamRARE).
